François-Xavier Bagnoud Center for Health and Human Rights Harvard School of Public Health ADDENDUM: TECHNICAL INFORMATION FOR SURVEY ON HEALTH AND HUMAN RIGHTS ORGANIZATIONS OBJECTIVE OF THE SURVEY The aim of this project is gather information on current sources of institutional experience and information in support of efforts to integrate health and human rights into national and international programs and policies. HOW TO FILL IN THE SURVEY: - Period covered: the survey is intended to gather information on current programs, however in order to more accurately reflect the nature of their work, organizations may base their responses on programs or activities conducted from June 1997 to present. - Space: if there is not enough space on the form for your reply, please continue on a separate sheet, indicating the corresponding question. - Format: submission of replies in electronic form (e-mail or on diskette) would be much appreciated. - Copying survey: organizations are encouraged to photocopy and circulate the survey to partnering or other interested organizations or commissions. - Additional information: organizations are encouraged to submit copies of annual reports, brochures or other materials describing their program or work. Organizations may submit materials and any and all available languages. This information will be made available to WHO but will not be made public by the FXB Center. SURVEYS MAY BE RETURNED VIA E-MAIL OR POSTAL MAIL. POSTAL ADDRESS: François-Xavier Bagnoud Center for Health and Human Rights Attn: Health Survey Harvard School of Public Health 651 Huntington Avenue, 7th Floor Boston, MA 02115 USA Tel: (1) 617.432.0656 Fax: (1) 617.432.4310 E-MAIL ADDRESS: E-mail: fxbcenter_survey@hsph.harvard.edu FOR MORE INFORMATION, PLEASE CONTACT: François-Xavier Bagnoud Center for Health and Human Rights Fax: (1) 617.432.4310 E-mail: fxbcenter_survey@hsph.harvard.edu DEFINITION OF TERMS AND FRAMEWORK USED IN SURVEY HUMAN RIGHTS The term "human rights" generally refers to an internationally agreed-upon set of principles and norms contained in declarations, resolutions and treaties at the international and regional level. Human rights principally involve the relationship between governments and individuals and set forth obligations on governments to respect (i.e. abstain from violating), protect (i.e. prevent others from infringing upon) and fulfill (i.e. take positive steps to ensure the full realization of) the human rights of individuals and groups. Broadly speaking human rights can be interpreted as defining what governments can do to individuals or groups, cannot do to individuals or groups and should do for individuals or groups. HEALTH AND HUMAN RIGHTS FRAMEWORK Programs or policies that deal with health and human rights include those that recognize, and incorporate into their design, implementation and evaluation one or more of the following considerations: the effects of health policies and programs on human rights; the health consequences of human rights violations; and the inextricable linkage between promoting and protecting health and promoting and protecting human rights. DESCRIPTION OF HEALTH PROGRAM AREAS The health program areas in Part IV of the survey are intended to generally reflect the major health issues and challenges of the decade, as identified by WHO. There are significant levels of overlap between the issue areas; organizations should utilize their own discretion when determining how to define their health programs or activities. HEALTH PROGRAM AREAS (listed in alphabetical order) Access, quality and rational use of medicines: Those programs that address the access, affordability, quality, safety and rational use of drugs and/or national drug policies. Blood safety and clinical technology: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of the access of populations to safe blood, blood products and medical technologies. Child and adolescent health: Efforts to reduce the levels of mortality and morbidity and promote the health and development among children and adolescents. This can include addressing mental and emotional health of children and adolescents as well addressing other listed health areas specifically among child and adolescent populations. Communicable diseases: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of communicable diseases of known and unknown etiology, including emerging, epidemic-prone and zoonotic diseases, zoonotic foodborne diseases and resistance to anti-infective drugs. Disability/injury prevention and rehabilitation: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of violence, unintentional injury and disability. Emergency preparedness and response: Those programs that address the prevention, preparation, response and mitigation of the health impacts from disasters, including conflict and complex humanitarian and civil disasters. Food safety: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of food safety or foodborne risks. Health and development: Those programs that focus on the determinants of health by addressing development policies; health problems that disproportionately affect the poor; health, education or employment systems; or those programs that integrate health objectives into development. Health and the environment: Those efforts that address the link between human health and environmental conditions, policies, legal and regulatory frameworks. Health promotion: Those programs that address multisectoral public policies that integrate health promotion, self-care and health protection. HIV/AIDS: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of HIV, AIDS or people living with HIV/AIDS. Immunization and vaccine development: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of diseases through the use or development of vaccine, biological and immunization-related strategies. Information for health policy: Those programs that address the compilation, structure or use of information as the basis of health policies, particularly the implications for equity and vulnerability. Malaria: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of malaria. Maternal and infant health: Those programs geared to reduce morbidity and mortality among women and infants and those programs that address access, equity, or quality of maternal, newborn and fertility regulation programs. Mental health and substance abuse: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of mental disorders and substance abuse. Non-communicable diseases: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of non-communicable diseases. Nutrition: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of nutrition, food security, or diet-related problems. Organization of health services: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of the capacity, design, planning or delivery of medical and health care services. Reproductive and sexual health: Efforts to address the reproductive and sexual health of populations including, but not limited to, those programs focusing on the information, services, behaviors, products, standards, and barriers to reproductive and sexual health. Research policy and promotion: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of the generation of scientific knowledge, research activities and initiatives to strengthen research capacities. Tobacco control: Efforts to reduce the prevalence of tobacco use, the harm caused by tobacco products and the exposure to tobacco smoke. Tuberculosis: Those programs that address the medical, social, cultural, material, preventative, human rights, legal or structural aspects of tuberculosis. Women's health: Those programs that address the health and well-being of women or address gender-based health, medical, social, cultural, material, human rights, legal or structural disparities, including issues involving violence or gender-based power differentials. For more information on the François-Xavier Bagnoud Center for Health and Human Rights please visit our website at www.hsph.harvard.edu/fxbcenter.htm