CHDS Seminar with Hadley Stevens Smith: Preferably precise: Considering preference information in evaluations of precision medicine
June 5th @ 1:00 pm - 2:00 pm
Abstract: Precision medicine interventions such as genomic sequencing are increasingly relevant for population screening and clinical diagnosis. Many aspects of precision medicine uptake and delivery are highly preference-sensitive, with preferences of patients, families, and health care professionals driving implementation. This talk with explore conceptual and pragmatic aspects of eliciting and integrating preferences into evaluations of precision medicine using pediatric genomic sequencing as a case example. The talk will include discussion of foundational qualitative research intended to inform quantitative preference research.
Bio: Dr. Hadley Stevens Smith is a health economist and a scholar of the ethical, legal, and social implications of genomics. Her research evaluates clinical, patient-centered, and economic outcomes of genomic medicine, primarily for newborn and pediatric patient populations, with the goal of informing efficient and ethical implementation of genomic technologies in clinical care. Dr. Smith is currently studying the family-level utility of pediatric genomic sequencing using a patient-centered approach and decision science methods.