Book Launch: Consumer Genetic Technologies: Ethical and Legal Considerations
November 2 @ 12:30 pm - 1:30 pm
In September 2021, Cambridge University Press published Consumer Genetic Technologies: Ethical and Legal Considerations. This volume, edited by I. Glenn Cohen, Nita A. Farahany, Henry T. Greely, and Carmel Shachar, stems from the Petrie-Flom Center’s 2019 annual conference, which brought together leading experts to explore what ethical and regulatory safeguards should be implemented and discuss the many questions raised by advancements in consumer genetics.
Join us on November 2nd for a panel discussion with some of our expert authors and editors.
From the Publisher:
For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation.
- Introduction: Carmel Shachar, Executive Director, The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School
- Emily Largent, Assistant Professor, Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania
- Natalie Ram, Professor of Law, University of Maryland Francis King Carey School of Law
- Jacob S. Sherkow, Professor of Law, College of Law and Affiliate, Carl R. Woese Institute for Genomic Biology, University of Illinois
- Moderator: Henry T. Greely, Deane F. and Kate Edelman Johnson Professor of Law; Professor, by courtesy, Genetics; Chair, Steering Committee of the Center for Biomedical Ethics; and Director, Stanford Program in Neuroscience and Society, Stanford Law School
The event is sponsored by the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School and organized in collaboration with Nita A. Farahany, Duke Law School, and Henry T. Greely, Stanford Law School.